Tag Archives: mashable

That “other disease” isn’t as sexy…

MDG #6 Logo- Fight HIV and other disseasesIts one of the world’s biggest killers, but it continues to be one of the most neglected diseases. Tuberculosis. It kills more people than AIDS, even though we’ve have the treatment for almost 40 years.

The sixth Millennium Development Goal is “Combat HIV/AIDS, Malaria, and other diseases.” We all know about HIV/AIDS. Amazing work has been done in the field of treatment, advocacy, education and human rights within the sphere of AIDS. Billions of dollars have been spent, rightly so, on combating the world epidemic.

But for all the attention and money that has been spent on HIV and AIDS, “other diseases” including TB have been largely ignored.

Craig David and Lee Reichman speak about TB

"If I can use my celebrity to bring awareness to TB, that's good. Its important" - Craig David

And at the UN Foundation/Mashable Digital Media Lounge, UN Goodwill Ambassador and musician Craig David threw his celebrity behind the cause. He was joined by Lucy Chesire, a TB/HIV survivor from Kenya and Lee Reichman, a leading academic in the field.

Closeup of Craig David, speaking about TBThe panel focused on two overarching problems that keep TB in the dark, so to speak: Ignorance and Stigma. Most people in industrialized nations don’t realize TB is still around. And those that do have it are afraid to self-report.

The lack of public interest results in a lack of funding, too. When asked if the profile of TB discouraged drug companies from developing better drugs, Lee Reichman answered, “Yes, yes and YES! Its a non sexy disease. People don’t care about it. Drug companies have to compete for profits…” As a result, there is an increased need for public-private partnerships, in order to get the drugs and treatments that we need.

TB Survivor speak about her experiences

"At the end of the day we are all connected by the air we breathe. And its in the air that TB can spread." - Lucy Chesire, TB survivor and activist

I’ve studied stigma reduction campaigns and have noted that  advocates for many health issues (AIDS, leprosy, some disabilities) have been able to shift the discourse from a medical model to a human rights model. There certainly seems to be some of that shift evident in TB strategies – Ms. Chesire mentioned participatory programs in her own country, Kenya, and the focus on empowering people with TB. I’m wondering what kind of networked advocacy efforts are in place with (for example) immigrant rights groups… I’ll be looking into this further. Any comments or case studies are welcome!

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A preview of what’s to come….

Digital Media Lounge

This afternoon I’m leaving for New York to cover the UN MDG Summit. I’ll be participating in the Digital Media Lounge and will be blogging, pretty much non-stop!

I’ll be covering as much as I possibly can, but here are a few things I’ll be focusing on:

  • ICT4D (Information and Communication Technologies for development)- how development and humanitarian agencies are using communications and new tech to reach development goals
  • Disaster relief 2.0 – how organizations and governments are using collaborative technologies to better (hopefully) coordinate aid and humanitarian assistance
  • Media’s impact on development- what is media’s role? How can we strengthen media?
  • If, and how, any of these new technologies better include people with disabilities into development, or whether they have been considered…

I’ll also be covering the Obama and Ban Ki-Moon speeches!

You can also follow me on Twitter: LCMoy !